The Value of Work for Those with Severe Disabilities

Have you ever wondered what the point of working is if you have a severe disability? Many people with disabilities, like those without, work to support themselves financially. Social Security Disability Insurance (SSDI) is often insufficient to sustain a healthy lifestyle, and not everyone meets the stringent criteria for eligibility. Instead of relying solely on benefits, individuals with severe disabilities should consider the benefits of work, which can bring dignity, respect, and a sense of capability to their lives.

Why Working Despite a Severe Disability

Despite the difficulties that come with a severe disability, working can offer several benefits beyond mere financial support. Below, we outline a few reasons to remain employable and engaged in the workforce:

1. Self-Respect and Pride

One of the most crucial benefits of working is the sense of self-respect and pride it brings. By participating in society as a productive member, individuals can gain confidence and a greater sense of self-worth regardless of their disabilities. Whether it's holding a job that aligns with one's career aspirations or simply contributing to one's community, these experiences can significantly impact an individual's well-being.

2. Financial Independence Beyond SSDI

Many people with disabilities rely on SSDI to make ends meet, but SSDI often falls short of covering all expenses. Finding a way to earn additional income, even if it's through part-time or flexible work, can provide a more stable and secure financial situation. For instance, freelance work, disability photography, or other creative enterprises can generate extra income and help individuals manage their living costs.

3. Escape and Sense of Normalcy

Work offers an opportunity to escape the daily challenges of living with a severe disability. It can provide a temporary distraction and a sense of normalcy, allowing individuals to focus on their work rather than their limitations. This mental break can be incredibly rejuvenating and help maintain mental health and overall well-being.

4. Proving Capability

Through work, individuals can demonstrate their capabilities and prove that their disabilities do not define them. Instead of being seen as incapable, they can carve out a space where their skills and talents are recognized and valued. This can be particularly empowering for those who may have faced skepticism or prejudice in the past.

Real-Life Example - A Journey through Acting

Consider my own journey, which started when I entered a community college in Illinois. Although I was unable to obtain disability benefits due to bizarre state laws that required me to be 50 years old, I decided to take advantage of the student programs that allowed me to act for free. This experience opened the door to a newfound passion and provided a form of work that aligned with my disability.

By taking on roles suited to my abilities, such as sitting on a bus or in a waiting area, I was able to stay engaged and feel productive. These roles not only provided me with a sense of purpose but also allowed me to interact with the film industry and its processes. Over the past few years, I've had the opportunity to work on several popular shows, including Chicago Fire, Chicago PD, Chicago Med, Chicago Justice, and Zoobiquity.

While the pay is minimal, the experience is invaluable. I look forward to these opportunities to forget about my real-life challenges and engage in a world that temporarily ignores my disability. Additionally, being able to send in pay stubs as evidence of employment can be crucial for maintaining certain privileges and benefits.

Conclusion

While working with a severe disability may present challenges, the benefits of engaging in the workforce far outweigh the drawbacks. From gaining self-respect and pride to proving one's capabilities and finding temporary respite, work can bring immense value to the lives of those with disabilities. Whether through traditional employment or alternative forms of work, it is crucial to explore all avenues available to ensure a fulfilling and dignified life.